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TrialConditionsStatusPhaseUpdatedMore infoNCT ID
DICER1-related Pleuropulmonary Blastoma Cancer Predisposition Syndrome: A Natural History StudyHead and Neck Neoplasms, Neoplasms by Site, benign cystic nephroma, endocrine system disorder, malignant endocrine neoplasm, neoplasm, pleuropulmonary blastoma, thyroid gland disorder, thyroid tumorRecruitingNot stated2026-10-02NCT01247597
Testing a Standardized Approach to Surgery and Chemotherapy for Type I Pleuropulmonary Blastoma or the Addition of an Anti-cancer Drug, Topotecan, to the Usual Treatment for Types II and III Pleuropulmonary Blastomapleuropulmonary blastomaRecruitingPhase 32026-08-25NCT06647953
An International Study on Pediatric Patients With Rare Tumors.Digestive System Diseases, Digestive System Neoplasms, Esthesioneuroblastoma, Olfactory, Head and Neck Neoplasms, Hemic and Lymphatic Diseases, Neoplasms by Histologic Type, Neoplasms by Site, Neoplasms, Connective and Soft Tissue, Neoplasms, Germ Cell and Embryonal, Neoplasms, Nerve Tissue, Neuroectodermal Tumors, Primitive, Neuroectodermal Tumors, Primitive, Peripheral, Otorhinolaryngologic Neoplasms, Pharyngeal Diseases, Skin and Connective Tissue Diseases, Stomatognathic Diseases, Thoracic Neoplasms, Thymus Neoplasms, adenoma, adrenal cortex disorder, adrenal cortex neoplasm, adrenal gland cancer, adrenal gland disorder, carcinoma, connective tissue neoplasm, cranial nerve neuropathy, digestive system disorder, digestive system neoplasm, endocrine system disorder, epithelial neoplasm, gastrointestinal stromal tumor, lymphatic system disorder, malignant endocrine neoplasm, melanocytic neoplasm, melanoma, mesothelial neoplasm, mesothelioma, nasopharyngeal carcinoma, nasopharyngeal disorder, nasopharyngeal neoplasm, neoplasm, nervous system disorder, neuroblastoma, neuroendocrine neoplasm, neuroepithelial neoplasm, nut midline carcinoma, olfactory nerve disorder, otorhinolaryngologic disease, pancreas disorder, pancreatic neoplasm, pleuropulmonary blastoma, primitive neuroectodermal tumor, skin disorder, skin neoplasm, thyroid gland carcinoma, thyroid gland disorder, thyroid tumorRecruitingNot stated2025-07-18NCT07072143
International PPB/DICER1 RegistryAdnexal Diseases, Congenital, Hereditary, and Neonatal Diseases and Abnormalities, DICER1-related tumor predisposition, Female Urogenital Diseases, Female Urogenital Diseases and Pregnancy Complications, Genital Diseases, Gynandroblastoma, Head and Neck Neoplasms, Male Urogenital Diseases, Myosarcoma, Neoplasms by Histologic Type, Neoplasms by Site, Neoplasms, Connective and Soft Tissue, Neoplasms, Germ Cell and Embryonal, Neoplasms, Nerve Tissue, Neuroectodermal Tumors, Primitive, Neuroectodermal Tumors, Primitive, Peripheral, Pathologic Processes, Pathological Conditions, Signs and Symptoms, Pituitary Neoplasms, Rhabdomyosarcoma, Embryonal, Sertoli-Leydig cell tumor, Sex Cord-Gonadal Stromal Tumors, Thyroid Nodule, Urogenital Diseases, Urogenital Neoplasms, Wilms tumor, benign cystic nephroma, benign urinary system neoplasm, brain disorder, central nervous system cancer, central nervous system disorder, disease, endocrine system disorder, epithelial neoplasm, female reproductive system disorder, female reproductive system neoplasm, goiter, gonadal disorder, gonadal tissue neoplasm, hereditary disease, hereditary neoplastic syndrome, hypothalamic disorder, hypothalamic neoplasm, kidney cancer, kidney disorder, kidney sarcoma, male reproductive organ cancer, male reproductive system disorder, malignant endocrine neoplasm, mixed neoplasm, myomatous neoplasm, neoplasm, nervous system disorder, neuroblastoma, neuroepithelial neoplasm, nodular goiter, ovarian cancer, ovarian disorder, ovarian sarcoma, pineal body neoplasm, pineoblastoma, pituitary gland disorder, pleuropulmonary blastoma, primitive neuroectodermal tumor, rhabdomyosarcoma, sarcoma, supratentorial cancer, testicular cancer, testicular disorder, thyroid gland carcinoma, thyroid gland disorder, thyroid tumor, urinary system disorderRecruitingNot stated2025-01-30NCT03382158
International Pleuropulmonary Blastoma (PPB) Treatment and Biology Registrycystic disease of lung, pleuropulmonary blastomaActive, not recruitingNot applicable2024-08-21NCT01464606