Ann & Robert H. Lurie Children's Hospital of Chicago and the Stanley Manne Children's Research Institute

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Trial	Conditions	Status	Phase	Updated	More info	NCT ID
International Rapid-onset Obesity With Hypothalamic Dysfunction, Hypoventilation & Autonomic Dysregulation (ROHHAD) Registry	Hypoventilation, Pathological Conditions, Signs and Symptoms, Respiration Disorders, Signs and Symptoms, Signs and Symptoms, Respiratory, autonomic nervous system disorder, nervous system disorder, primary dysautonomia, rapid-onset childhood obesity-hypothalamic dysfunction-hypoventilation-autonomic dysregulation syndrome, respiratory failure, respiratory system disorder	Recruiting	Not stated	2026-09-03		NCT03135730
International Congenital Central Hypoventilation Syndrome (CCHS) Registry and CCHS SHARE	Congenital Abnormalities, Congenital, Hereditary, and Neonatal Diseases and Abnormalities, Digestive System Abnormalities, Digestive System Diseases, Hirschsprung disease, Neoplasms by Histologic Type, Neoplasms, Germ Cell and Embryonal, Neoplasms, Nerve Tissue, Neuroectodermal Tumors, Primitive, Neuroectodermal Tumors, Primitive, Peripheral, central hypoventilation syndrome, congenital, 1, with or without Hirschsprung disease, colonic disorder, digestive system disorder, epithelial neoplasm, ganglioneuroblastoma, intestinal disorder, megacolon, neoplasm, neuroblastoma, neuroepithelial neoplasm, primitive neuroectodermal tumor	Recruiting	Not stated	2026-09-03		NCT03088020

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