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Longitudinal Study of the Porphyrias

Longitudinal Study of the Porphyrias

Recruiting · NCT01561157 · Registry updated 2026-05-15
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Clinical trials

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TrialConditionsStatusPhaseUpdatedMore infoNCT ID
Longitudinal Study of the PorphyriasCongenital, Hereditary, and Neonatal Diseases and Abnormalities, Coproporphyria, Digestive System Diseases, Nutritional and Metabolic Diseases, Skin and Connective Tissue Diseases, acute intermittent porphyria, erythropoietic protoporphyria, hepatic porphyria, hereditary disease, hereditary skin disorder, liver disorder, metabolic disease, porphyria, skin disorderRecruitingNot stated2026-05-15NCT01561157

2 results · Page 1 of 1

Organizations

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OrganizationsLinked trials
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)617
The American Porphyrias Expert Collaborative1

16 results · Page 1 of 1

Research sites

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Research sitesCityCountryLinked trials
Carolinas Medical Center and HealthCare SystemCharlotteUnited States1
Cleveland ClinicClevelandUnited States558
Icahn School of Medicine at Mount SinaiNew YorkUnited States342
Massachusetts General HospitalBostonUnited States1015
Thomas Jefferson UniversityPhiladelphiaUnited States165
University of Alabama, BirminghamBirminghamUnited States3
University of California, Los AngelesLos AngelesUnited States142
University of California, San FranciscoSan FranciscoUnited States294
University of Illinois at ChicagoChicagoUnited States1
University of MiamiMiamiUnited States327
University of MinnesotaMinneapolisUnited States325
University of Texas Health Science Center at HoustonHoustonUnited States42
University of Texas Medical BranchGalvestonUnited States45
University of UtahSalt Lake CityUnited States106
University of WashingtonSeattleUnited States172
Wake Forest University Health SciencesWinston-SalemUnited States2