TIRCON International NBIA Registry | ClinicalTrials HQ

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Trial	Conditions	Status	Phase	Updated	More info	NCT ID
TIRCON International NBIA Registry	Congenital, Hereditary, and Neonatal Diseases and Abnormalities, Familial apoceruloplasmin deficiency, Kufor-Rakeb syndrome, Woodhouse-Sakati syndrome, aceruloplasminemia, basal ganglia disorder, brain disorder, central nervous system disorder, fatty acid hydroxylase-associated neurodegeneration, hereditary disease, inherited neurodegenerative disorder, movement disorder, nervous system disorder, neuroaxonal dystrophy, neurodegeneration with brain iron accumulation, neurodegenerative disease, neuroferritinopathy, pantothenate kinase-associated neurodegeneration	Recruiting	Not stated	2025-06-05		NCT05522374

3 results · Page 1 of 1

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Organizations	Linked trials
LMU Klinikum	34
NBIA Alliance	1
Seventh Framework Programme	1

9 results · Page 1 of 1

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Research sites	City	Country	Linked trials
Charles University, Department of neurology	Prague	Czechia	1
Children's Hospital of Eastern Ontario, Division of Neurology, Department of Pediatrics	Ottawa	Canada	1
Hospital Sant Joan de Déu, Universitat de Barcelona, Servei de Neurología	Barcelona	Spain	1
Hospital Vall d'Hebron - Institut de Recerca (VHIR), Pediatric Neurology, Movement Disorders	Barcelona	Spain	1
LMU Klinikum, Friedrich-Baur-Institute	Munich	Germany	1
The Childrens Memorial Health Institute	Warsaw	Poland	1
The Foundation of the Carlo Besta Neurological Institute, IRCCS	Milan	Italy	1
University medical Center Groningen (UMCG) Department of Neurology AB 51	Groningen	Netherlands	1
University of Belgrade, Department of Movement Disorders and Degenerative Brain Diseases	Belgrade	Serbia	1