Comprehensive HHT Outcomes Registry of the United States (CHORUS) | ClinicalTrials HQ

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Trial	Conditions	Status	Phase	Updated	More info	NCT ID
Comprehensive HHT Outcomes Registry of the United States (CHORUS)	Arteriovenous Malformations, Cerebral, Cardiovascular Abnormalities, Central Nervous System Vascular Malformations, Congenital Abnormalities, Congenital, Hereditary, and Neonatal Diseases and Abnormalities, Digestive System Diseases, Epistaxis, Gastrointestinal Hemorrhage, Hemic and Lymphatic Diseases, Hemorrhage, Pathologic Processes, Pathological Conditions, Signs and Symptoms, Signs and Symptoms, Signs and Symptoms, Respiratory, arteriovenous hemangioma/malformation, arteriovenous malformations of the brain, brain disorder, cardiovascular disorder, central nervous system disorder, central nervous system malformation, cerebrovascular disorder, digestive system disorder, hematologic disorder, hemorrhagic disease, hereditary hemorrhagic telangiectasia, intracranial arterial disease, nasal disorder, nervous system disorder, otorhinolaryngologic disease, respiratory system disorder, telangiectasis, vascular disorder, vascular hemostatic disease, vascular malformation	Recruiting	Not stated	2026-07-17		NCT06259292

18 results · Page 1 of 1

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Organizations	Linked trials
Augusta University	35
Columbia University	375
Cure HHT	3
Health Resources and Services Administration (HRSA)	16
Massachusetts General Hospital	758
Mayo Clinic	970
Oregon Health and Science University	244
The Cleveland Clinic	239
University of Alabama at Birmingham	467
University of California, Los Angeles	355
University of California, San Francisco	637
University of Colorado, Denver	475
University of North Carolina, Chapel Hill	249
University of Pennsylvania	502
University of Texas	36
University of Utah	319
Washington University School of Medicine	475
Yale University	458

16 results · Page 1 of 1

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Research sites	City	Country	Linked trials
Augusta University	Augusta	United States	57
Columbia University	New York	United States	154
Massachusetts General Hospital	Boston	United States	1015
Mayo Clinic	Rochester	United States	664
Oregon Health and Science University	Portland	United States	382
The Cleveland Clinic	Cleveland	United States	2
University of Alabama at Birmingham	Birmingham	United States	247
University of California, Los Angeles	Los Angeles	United States	142
University of California, San Francisco	San Francisco	United States	10
University of Colorado, Denver	Aurora	United States	10
University of North Carolina, Chapel Hill	Chapel Hill	United States	6
University of Pennsylvania	Philadelphia	United States	507
University of Texas Southwestern	Dallas	United States	73
University of Utah	Salt Lake City	United States	106
Washington University School of Medicine	St Louis	United States	895
Yale University	New Haven	United States	352