ALS/MND Natural History Study Data Repository
ALS/MND Natural History Study Data Repository
Recruiting · NCT05966038 · Registry updated 2026-05-20Clinical trials
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| Trial | Conditions | Status | Phase | Updated | More info | NCT ID |
|---|---|---|---|---|---|---|
| ALS/MND Natural History Study Data Repository | Congenital, Hereditary, and Neonatal Diseases and Abnormalities, Kennedy disease, Nutritional and Metabolic Diseases, TDP-43 proteinopathy, X-linked disease, amyotrophic lateral sclerosis, central nervous system disorder, hereditary disease, inherited neurodegenerative disorder, metabolic disease, motor neuron disorder, nervous system disorder, neurodegenerative disease, neuromuscular disease, progressive bulbar palsy, proteostasis deficiencies, spinal cord disorder, spinal muscular atrophy | Recruiting | Not stated | 2026-05-20 | NCT05966038 |
18 results · Page 1 of 1
Organizations
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18 results · Page 1 of 1
Research sites
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| Research sites | City | Country | Linked trials |
|---|---|---|---|
| Centro Clinico NEMO Milano | Milan | Italy | 1 |
| Hadassah Medical Organization | Jerusalem | Israel | 2 |
| Henry Ford Health System | Detroit | United States | 147 |
| Istituti Clinici Scientifici Maugeri SpA | Milan | Italy | 1 |
| Kaiser Permanente | Los Angeles | United States | 9 |
| Lahey Clinic | Burlington | United States | 70 |
| Loma Linda University Health | Loma Linda | United States | 24 |
| Northwestern University | Chicago | United States | 727 |
| Providence ALS Clinic | Portland | United States | 1 |
| Saint Louis University | St Louis | United States | 17 |
| Tel Aviv Medical Center | Tel Aviv | Israel | 1 |
| Temple University Lewis Katz School of Medicine | Philadelphia | United States | 2 |
| Thomas Jefferson University | Philadelphia | United States | 165 |
| Trinity Health Michigan | Grand Rapids | United States | 2 |
| University of Florida | Gainesville | United States | 144 |
| University of Minnesota | Minneapolis | United States | 325 |
| University of Pittsburgh | Pittsburgh | United States | 1 |
| Virginia Commonwealth University | Richmond | United States | 1 |